"Who would be selected as the main caregiver?" - A paradigm shift of caregiver support services on dementia care in the Chinese Society
Refereed conference paper presented and published in conference proceedings



摘要Traditionally, the caregiver is defined as "a family member (or friend) helping someone on a regular basis with tasks necessary for independent living" (Zarit and Edwards,1996). When we are focusing much on how to intervene or offering various kinds of support to the family caregivers, have we yet considered who and why the specific one to be the "main caregiver"? What are the mechanism and the criteria to be the "selected" one as the main caregiver in the Chinese society? Were any differences between the Chinese and the Western countries?
Regarding the situation in Hong Kong, it was found that the family member taking care of person with dementia will be easily to be "chosen" with five common factors. The factors were (1) Female; (2) Living together or living closely; (3) Not married without other family's burden; (4) the capacity of earning money without bargaining power among the family members; (5) the weakest status of power in the family dynamics. He/She may not be the voluntary one but being "chosen" in the Chinese traditional norms and filial piety. He/she may not be ready or even not willing to be the main caregiver but no choice. The "being chosen" one will pick up the main caregiver's role with negative emotions, such as anger, despaired, blame, disappointment, etc. It is vital for the practitioners to be aware and makes a paradigm shift on designing the caregivers' support services.
The understanding of the family caregivers is suggested shifting to a model, called "PREFERS" in dementia care. It stands for "P-Physical conditions", "R-Relationship within the family", "E-Emotional status", "F-Financial planning and care budgeting", "E-Education on dementia care", "R-Resources accessibility" and "S-Social burden without dementia friendly society". The psycho-educational programme had been provided through the model of "PREFERS" and contributed to the positive changes eventually.
會議名稱29th Alzheimer Europe Conference- Making dementia a European priority
會議地點The Hague

上次更新時間 2019-03-12 於 15:44