Quality of Life Assessment of Chinese Families with Eczematous Children in Hong Kong
Refereed conference paper presented and published in conference proceedings

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AbstractBackground: Eczema affects nearly one-quarter of Hong Kong children. Their family members, especially parents, act as main carers who bear ample physical and psychological exhaustion. The Family Dermatology Life Quality Index is commonly used to measure quality of life of these families with eczematous children. However, the Chinese version of this index has not been validated in Hong Kong population.

Objective: This study examined the validity and reliability of Chinese version of Family Dermatology Life Quality Index (C-FDLQI) among parents or caregivers of children with eczema by examining the associations between disease severity and quality of life of children and their own self-efficacy. This study will also explore the major concerns of the participants in the caring process.

Design and Method: 147 Chinese participants were recruited by convenience sampling at the paediatric dermatology clinic of a university-affiliated teaching hospital. They completed C-FDLQI, the Cantonese version of Children’s Dermatology Life Quality Index (C-CDLQI) and the Chinese adaptation of Generic Self-Efficacy scale (C-GSE) for evaluating its internal consistency and convergent validity respectively. Fifty participants were asked to complete the C-FDLQI two days later to determine its test-retest reliability. One dermatologist assessed eczema severity of children using SCORing Atopic Dermatitis (SCORAD) score.

Results: C-FDLQI had high internal consistency with a Cronbach’s α of 0.95, and good test-retest reliability with weighted Kappa of each item ranging from 0.70 to 1.00. This index correlated well with C-CDLQI and SCORAD, with respective Pearson’s correlation coefficients of 0.75 (p<0.001) and 0.62 (p< 0.001). C-FDLQI was found to have inverse correlation with C-GSE (r =-0.28, p<0.001). Many participants commented that their burden in taking care of eczematous children had never been acknowledged. Participants of children with severe eczema expressed that they could not sleep well and deeply frustrated because of poor skin condition and resistant behaviour of their children. According to our findings, the parents and caregivers were e mostly affected by the long periods they spent on applying cream or giving medication to their children. The second item with the highest score was related to the routine household expenditure for buying skin products, specialist consultation fee and medication. This item was followed by the extra housework such as cleaning, washing or vacuuming in order to get rid of possible allergen triggers at home.

Conclusions: Our results support that C-FDLQI is a reliable and valid tool for evaluating the quality of life of parents or caregivers of children with eczema in Hong Kong. Quality of life of these family members can be improved by reducing the eczema severity of their children as the latter improvement will reduce the household workload and expenses.
Acceptance Date31/07/2019
All Author(s) ListNam Sze Cheng, Janita Pak Chun Chau, Kam Lun Ellis Hon, Kai Chow Choi, Chung Mo Chow, Jeng Sum Charmaine Kung, Wing Gi Ng, Ting Fan Leung
Name of ConferenceThe Asia Pacific Association of Allergy, Asthma and Clinical Immunology (APAAACI) International Conference 2019
Start Date of Conference05/09/2019
End Date of Conference07/09/2019
Place of ConferenceBeijing
Country/Region of ConferenceChina
LanguagesEnglish-United Kingdom
Keywordseczema, quality of life, family, Family Dermatology Life Quality Index

Last updated on 2019-04-12 at 15:42