Parents’ Perception of Procedural Pain Management and Use of Analgesics in Children with Cancer: A Pilot Study
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Children with cancer are repeatedly exposed to treatment-related pain and invasive procedures. This study examines parental stress and perceptions towards procedural pain and current pain control measures in children with cancer.

Parents were recruited from the pediatric oncology outpatient clinic or the ambulatory ward at the Prince of Wales Hospital from November–December2018. Parents used a pain scale (0–10) to report their perceived effectiveness of existing procedural pain control measures which typically include midazolam, ketamine, opioids, as well as non-pharmacological interventions. The Pain Flexibility Scale for Parents (PFS) and Parental Medication Attitude Questionnaire (Parental-MAQ) were administered to evaluate parental stress in coping with the child’s pain and their knowledge on analgesics, respectively.

This pilot study included 37 parents (90% response rate; 76% mothers) of children with cancer (child’s median age[IQR] 7.0[4.0-12.0] years; 62% male; 27% only child; 89% undergoing active treatment). A quarter (n=9; 24%) expressed significant stress and resistance in coping with the child’s pain. Out of the 24 parents whose children had undergone a lumbar puncture, 7 (29%) perceived that their child experienced moderate-to-severe pain (pain score>5) with existing pain control measures. A quarter indicated suboptimal pain control with child’s bone marrow biopsy (n=32). Responses on the Parental-MAQ revealed parents’ concerns or misconceptions over the use of analgesics, including fear of adverse effects (n=22; 59%) and addiction (n=12; 32%), and reservation of analgesics only for severe pain (n=25; 68%). The most frequently reported non-pharmacological interventions were distraction (n=31; 83%), pre-procedural pain counseling (n=28; 76%) and heat and/or cold compresses (n=25; 67%). Over half of them perceived these non-pharmacological interventions to be effective.

Our preliminary results identified parental distress with child’s pain and misconceptions over the use of analgesics in subgroups of parents in Hong Kong. Future work includes devising education interventions for these parents and children.
Acceptance Date01/03/2019
All Author(s) ListCheung Sum Yi Rita, Wong Cho Lee, Cheng Ho Yu, Peng Liwen, Ewig Lom-ying Celeste, Li Chi-Kong, Cheung Yin Ting
Name of ConferenceHong Kong Pharmacy Conference
Start Date of Conference09/03/2019
End Date of Conference10/03/2019
Place of ConferenceHong Kong
Country/Region of ConferenceHong Kong
LanguagesEnglish-United States

Last updated on 2019-26-11 at 09:14