Telehealth Interventions for Improving Self-Management in Patients with Hemophilia: A Systematic Review of Clinical Studies
Refereed conference paper presented and published in conference proceedings


Innovative interventions delivered by telehealth routes may help to improve the self-management of hemophilia, which is often demanding and complex. This systematic review aims to summarize the literature evaluating the effectiveness of telehealth interventions for improving health outcomes in patients with hemophilia, and provides direction for future research.
A search was conducted on Ovid MEDLINE, EMBASE and PubMed for studies (1) conducted on patients with hemophilia A or B; (2) tested the use of telehealth interventions via Internet, wireless, satellite, telephone or/and mobile phone media; and (3) reported on outcomes related to quality of life, functional status, or empowering patients to be decision-makers in the emotional, social or medical management of their illness. Reviews, commentaries or case reports comprising >10 cases, were excluded. Quality of studies was assessed using the Effective Public Health Practice Project Quality Assessment Tool for Quantitative Studies.
Sixteen articles were included. Methodological quality of most studies (n=13) was rated “weak” or “moderate” as they were single-arm and cross-sectional in nature. The components of the interventions were rather homogenous and typically involved electronic logging and reminders for prophylactic infusions (n=10); reporting of bleeding events (n=9); monitoring of infusion product usage and inventory (n=6); and real-time communication with healthcare professionals (n=5). Telemedicine-supported education and information interventions seemed to be particularly effective among adolescent and young adult patients. Although the patients reported improvements in their quality of life and perception of illness, telemonitoring devices did not appear to have a significant effect on quantifiable health outcomes, such as joint health. Longitudinal studies (n=2) seemed to suggest that the response and compliance rates decreased over time.
Preliminary evidence suggests that telehealth-delivered interventions could feasibly promote independence in disease management. A dedicated network of support is required to maintain the technology, improve compliance and validate the electronic data locally.
著者Yin Ting Cheung, Wen-Ji Qian, Tai-ning Teddy Lam, Henry Lam, Chi-Kong Li
會議名稱The First Cochrane Hong Kong Symposium
會議地點The Chinese University of Hong Kong
會議論文集題名The First Cochrane Hong Kong Symposium Abstract Book

上次更新時間 2019-02-07 於 17:04