What does caregiving mean to you? Hearing the voices from Hong Kong Chinese family caregivers of persons with dementia.
Refereed conference paper presented and published in conference proceedings


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AbstractBackground: The meaning that caregivers ascribe to caregiving plays an important role in dementia family caregiving1. It influences the behavioural and emotional responses of the caregivers, and their psychological adjustment to the caregiving situation2,3.

Aim: This study aims to explore the meanings that Chinese family caregivers of persons with dementia ascribed to their caregiving situation.

Methods: A descriptive qualitative study was conducted. Data was collected using unstructured interviews. Fifteen Hong Kong Chinese primary caregivers of persons with dementia were interviewed. All interviews were audio-taped and transcribed verbatim. Data was analysed using thematic analysis. Data analysis was completed in October 2016.
Results: Three main themes were identified: (1) Caregiving is a right thing to do; (2) Caregiving is a suffering; and (3) Caregiving is a sense of achievement.

Discussions: This study has illustrated that the meaning of dementia family caregiving carries both negative and positive aspects of caregiving. The negative aspects are in the forms of suffering while positive aspects are in the forms of achievement. Suffering is derived from the experience of loss of control and the demanding caregiving duties, while achievement is derived from helping the care-recipient and others to live with the disease. This sense of achievement has motivated caregivers to continue their caregiving role. In addition, the Chinese cultural values, such as filial piety, ‘mianzi (face)’ and ‘yuan’, also play a key role in influencing the caregiving experience, which will affect the meaning caregivers ascribed to caregiving.

Conclusion: To assist caregivers to go through the caregiving journey, professionals should identify ways to help caregivers to reframe the negative caregiving situation by gaining a sense of control and finding achievements they have obtained through caregiving. In addition, caregiving is viewed as a family affair in Chinese culture, interventions using a family-centered approach may also be beneficial.
All Author(s) ListPang Cho Kwan Rebecca, Lee Tze Fan Diana
Name of ConferenceRCN International Nursing Research conference and exhibition 2017
Start Date of Conference05/04/2017
End Date of Conference07/04/2017
Place of ConferenceOxford
Country/Region of ConferenceGreat Britain
Year2017
Month4
LanguagesEnglish-United Kingdom

Last updated on 2018-20-01 at 18:59